July 10, 2008 at 4:57 pm (1)
HI THERE 🙂 I have received so many emails from this blog and I feel badly that I haven’t continued it past Zack’s first introduction to GFCF. We lasted a month on it the first time and felt pressured from the school system to take him off of it. We did. Regrettably. Since then, we have moved to northern Minnesota (back in the small town where I grew up), enrolled him in a better school that I can trust, and he is now back on the GFCF diet. It is going much better for us this time. We are very blessed because Zackary is talking now. 90% of it is TOTALLY understandable but we’re still working on phonics. To read these entries again and know how I felt when he first popped out with his first words… wow, I love blogging!
Anyway, our journey is being logged at Our Small Town Blessings. Please join us there to read about our journey. I’m going to leave this blog up a small while longer so everyone can get the link 🙂
December 23, 2007 at 4:48 am (GFCF Diet)
I have actually really enjoyed cooking GFCF this past month. Today, I learned that I love baking GFCF too! I bought a package of GFCF yellow cake mix at the health food store for cupcakes. We’re going to California to see my in-laws for Christmas and I know they’ll have tons of sweets available! I’m hoping to avoid drama when Zack sees all the goodies by having some safe cookies, frosted cupcakes, and marshmallow treats on hand. So, I went to work on the GFCF cupcakes… and they came out great! I mean, really really great! I frosted them with a blend of unsweetened cocoa, powdered sugar, rice milk, and GFCF margarine and they really taste like a non-GFCF treat! Zack is going to love them 🙂
I also broke in my new breadmaker with a GFCF white bread mix. So far, I know it smells delcious but it’s too hot to slice still! I’m hoping it’ll be a hit because Zack really misses his french toast and his PB&J sandwiches.
December 22, 2007 at 5:37 am (Autism)
Tags: asd, Autism, help
Dear Autism Community,
Should I be worried that my son won’t stop scratching his ankles? I’ve been told this can be a common stim… How do I stop it? His ankles are so sore and making him cry!!
December 20, 2007 at 8:31 pm (Autism, GFCF Diet)
Tags: Autism, GFCF
As any mom knows, you have to have some kind of planning in your home or everything just falls apart by lunchtime. This is 100x more true if you have a child with autism. Zack thrives on structure. He has a daily schedule that he truly does well on and I couldn’t imagine our life without it. I wonder if other autie-loving families rely on their magic erase boards as much as I do…
I decided to start planning my meal plans in a more productive manner. It’s just not working very well for us when I go shopping and drop random things in the cart and then we go home and… well, what kind of meal am I going to make with salmon, baked beans, and mandarin oranges? Yuck. So, we wind up eating out a lot. Today, I decided I’m going to sit down and write out all our favorite GFCF meals and then I’ll have a list to look at when I’m planning our weekly menu. The weekly menu will be posted on my kitchen white board and then there’ll be no more “what’s for dinner?” Ummmmm…. hmmmmmmm…. Applesauce and chicken broth?
I’m going to post a page with our favorite meals today. And, I’m planning on a “New Recipe Day” every Monday after the Christmas season is over. We love to try new things but that’s risky with GFCF since half the recipes I try fail. So, once a week is plenty of new-tastes for us!
For breakfast, Zack had scrambled eggs, a banana, and 100% juice. He had a pajama party at school, which included popcorn. I sent a bag of air popped butterless popcorn from home. Lunch was chicken nuggets with crushed Lays Original as breading, baked fries, oranges, and Heinz ketchup. He’ll have some Christmas shaped marshmallows for a snack. And then, he’ll have quinoa pasta and Prego sauce with green beans for dinner.
December 20, 2007 at 4:15 am (Autism)
Tags: Autism, new years, resolutions
What’s the point of making them? Nobody keeps them anyway. Well, unless you’re a goal-oriented-perfectionistic-OCD-mom with a total phobia of failing. Like me. Yeah, I always meet my resolutions. Come hell or high water, I make them. In 2005, I wanted to put away my size 12/14 jeans and wear a 6. I’ve been maintaining a 4 for 2 years now. In 2006, I wanted to concentrate on optimism. If you’d known me before then, you’d know that I can’t get much perkier than I am now. In 2007, I wanted to give birth to get back into my pre-preg clothes and read 52 books in 52 weeks. I’ve been back at my pre-pregnancy weight since Zander was 3 months and I’m currently reading book #57. That’s just who I am. I’ve noticed a lot of moms of Auties with this same have-to-succeed attitude and I wonder if that’s why we’re given these little bundles of blessings. Did God hand Zack to me because he knew I would set a goal to recover him and I wouldn’t rest until that goal was met? Is that my purpose in this world?
This is my first New Years with the knowledge of Zack’s autism. Actually, this is my first New Years with any idea that Zack wasn’t perfectly normal. You see, other than delayed gross motor skills and a refusal to talk, Zack was TOTALLY “normal” until February of this year. February is when we started noticing that hey, our boy is really quirky. And, I mean that in an awesome way. I LOVE Zack’s personality! In April, we found out that his fascinating quirks were actually red flags of Autism. Ok. The news wasn’t easy at first (especially for my husband) but we worked through it and now we realize that Autism is a label… NOT a definition.
But, I still want to recover Zack. I still want to help him find his voice. Who wouldn’t? So, my New Years resolution is to be the best mom of an autie that I can be. I am going to be his advocate, his home therapist, and his best friend. The steps I am taking to complete this goal:
Calm Down. Eat chocolate, do yoga, take a hot bath. Whatever it takes to recenter myself and find peace during stressful days, I will do it. Like any other overanalytical, obsessive-compulsive Libra, I tend to stress out a lot and I need to stop that.
Research. I want to gather all my sources and learn as much as I can about home therapy so I can not only be the best for Zack at home but so I can teach the people who are with him on a daily basis how to work with my son.
Create a System. I want to set our downstairs playroom up to be a great sensory room for both the boys (Zander will also benefit from a little more structure as he grows up). I want to decorate the room in warm and welcoming colors instead of the typical over-stimulating bright colors that you usually associate with a playroom. I want to organize toys and set them up so instead of being surrounded by so much, we can put things away and concentrate on only one thing at a time.
Organize. What GFCF meal am I making for dinner tomorrow night? Who knows! I have fallen so hard off my organization wagon and that is why this diet is still a little harder for me than it should be. I am going to use my chart and list making skills to create an organized no-fail environment. I will also learn to schedule my time better so I am never left having to bring Zack into an over-stimulating grocery store with me. The outcome is NEVER good.
Help with our Income. Okay, so this is mostly my husband’s department. With his career location closing, he opted for the severance pay package so he can start the home business he’s been wanting to do. To help him, he asked me if I would be willing to learn data entry and word processing. I am fast with a keyboard (I type 133wpm) and I love being on the computer. If I can help take some of the mindless busywork off his shoulders, he can take on more clients and we can boost our income up to help pay for all of the things that are going to start hitting us soon. Oh, and I’m opening an eBay store too! But, that’s more of a hobby 🙂
I might add another step or 2 before New Years but for now, that’s my brainstorming. Zack is having a fit upstairs though so I’m running to check on him and tuck him back in. Muah!
December 18, 2007 at 1:25 am (Autism)
I am so excited to read this book. My mother brought it to me last week and I’ve been dying to open it and explore the world of Zack. But, with it being such an easy read, I figured it would be best to read it during our 5.5 hour drive to my husband’s family holiday party next week. My husband wants me to read it aloud during our trip because he wants to learn about Zack too but has no desire to ever open a book.
Which brings me to my next thought… Does falling somewhere along the spectrum run in families? Throughout my son’s baby years, we always compared him to his dad. “He is just like his father used to be” was a common phrase from my mother-in-law in the beginning. My husband was very socially awkward until we met and I dragged him from his shell of antisocial-people-hating. He also avoids anything remotely similar to confrontation (including eye contact) and he is unable to concentrate on something for very long unless it’s one of the few things he’s EXTREMELY interested in. He’s brilliant though and if he IS interested, he knows everything about it. And, as much as I love my stubborn husband, he can be extremely condescending if you disagree with him. I don’t know. It’s just a thought that has entered my mind and I’m almost positive it has to enter every parent’s mind at some point or another when they discover that their little one has autism. Did it come from the family? Hm.
This thought process led my husband to me too. I get irritated extremely quickly. I cannot just tune noise out like most people. If a bird is outside singing, I’m going to scream at it to shut up. If my husband turns the TV volume up above 17, I’m frustrated. I cannot stand our surround sound and the car radio does not need to be louder than audible unless it’s Nickelback or Billy Joel. I also have a bubble around me and Heaven help most people if they cross my bubble walls and touch me. “Don’t hang on me,” is a favorite phrase I use to everyone except my children. My husband has been permitted to cross my bubble walls as well but I will still only tolerate it for so long. I am also cold easily and if a breeze touches my skin I am going to put a sweatshirt on and shiver. I don’t care if the Vegas weather reaches 115, I will wear a sweater if there is a breeze. My husband thinks I have Sensory Integration Dysfunction. I think he has Asperger’s.
Is this line of thought common in parents of autiebabes or are we just nuts?
December 16, 2007 at 11:50 pm (Autism)
As I sit at the table with my 3-year-old and a pile of colorful bears, I start to wonder what other 3-year-olds are capable of. Is my son able to do more when it comes to intellect and skills? Is he doing less? I know that one should never compare their child with any others, but when you spend 24 hours every day wondering just what you should be teaching your child, you tend to think in terms of comparisons. Is his counting up to par or should we work more on it? Colors? Drawn circles? Should we spend less time playing matching games and more time stacking cups? Or, should we forget table time all together and concentrate on larger motor skills at the playground?
Boy, I wish children came with manuals…
The diet is going fabulously! We’ve had no known accidental gluten or casein moments and while Zack is still a little ball of energy, his behavior has settled in the anger and frustration department. He is very outgoing right now and will talk to anyone and expect a response immediately. If there is no response, he will repeat himself until he feels heard. He is also counting, but he refuses to say the number six. Six is evil and ignored. Even if I correct him, he will skip it again. Six must die. Someday, when his language excedes the current level of “cookie” and “poople” I will ask him. “Zack, why don’t you like the number six?”
I bet he has a reason. Zack always has a reason.
December 14, 2007 at 5:39 pm (Autism)
It comes naturally to me. If I feel my son needs speaking up for, you bet your ass my mouth will open. My husband avoids confrontation, which is probably why he married me. Opposites attract and all that. Lately, confrontation has been my head title and middle name.
I am extremely stressed out with Zack’s school. His teacher avoids me unless she has really good news. Yesterday, I decided that Zack will not ride his bus anymore and I will be picking him up. I went to the school and his teacher told me “Zack put on his own jacket today!” and then disappeared and I didn’t see her during the rest of my stay at the school. Instead, I spoke with the TA and she agreed that the preschool teacher is overwhelmed and doesn’t know what to do with my son. So, it’s agreed then… Zack does not belong in that woman’s classroom.
With that knowledge, I refuse to sit by and “wait until March for the psychologist to evaluate him.” I have set up a meeting with the principal, called the language pathologist from the other school for recommendation, had our pediatrician send a referal for immediate evaluation to the school, and spoke with the neuropsychologist’s assistant about them sending a referal as well. When I get in to see the principal, I have notes on what is and isn’t helping my son in the preschool program. I am listing the class as “inappropriate for a child with special needs” and requesting an immediate transfer to the full-time class for autism at the other school. I know the teacher in that class and I TRUST her. She’s been on both sides of the table… She teaches children with autism and she has a child on the spectrum herself. That makes all the difference!
December 13, 2007 at 4:38 pm (Accomplishments, Autism, GFCF Diet)
Tags: Autism, GFCF
I am so sorry for my absence! My mother is in town and I haven’t really been on the computer much. But, here’s an update and then I hope to get back to my regular posting. Zack is doing absolutely amazing! His withdrawl symptoms are GONE (knock on wood) and other than his normal screeching when I tell him no about something, he is behaving pretty well too. I’m really happy with him! His language development is on the up and up. We went from a few spontaneous words last week to SO MANY, I’m not able to track how many he uses now! We bought him a tent that we put up in the playroom yesterday because I was told that he might need a private little place to escape to. As soon as he saw it, he grins and says “what’s that?” Words like that just keep popping out of his mouth.
But, I’m having issues with his school again. Zack’s busdriver told me yesterday that his preschool teacher waited until he was strapped down into the bus seat yesterday afternoon and then took a toy from his hand and said “this has to stay here” and walked off the bus. Do you KNOW how much damage that can do to a 3-year-old with autism who has object attachment issues. This is the kind of stuff she just does! The day before that, she called me to pick him up from school because he was throwing a tantrum about the SAME TOY and wouldn’t get on the bus. I told her not to give in and I’d be there in 10 minutes. I’m teaching him to GIVE A TOY UP, not just rip it out of his hands. But when I arrived, she brought him into the office and he was holding the toy she’d been talking about. She says “I give up” and basically walked away. I told her no, she doesn’t and I made him into giving the toy back and then rewarded him with skittles. She looked irritated just being around my son. I hate that he’s not in a class for children with autism… he’s in a special needs preschool and his teacher knows NOTHING about autism.
So, it looks like I have some complaining to do on my son’s behalf.
December 8, 2007 at 9:41 pm (GFCF Diet)
Tags: GFCF, Las Vegas
Day 12. My husband seems to be bringing up how Vegas isn’t helping us very much at all when it comes to our son. It’s a rather cold-hearted city where people don’t seem to care about each other much, if at all. We’ve been here since April 2003 and we have only 4 people I would willingly call a friend. Our families are both in other states. I understand his reasoning. He wants to live in a smaller town with a closer-knit community that would join together to care about our son. But, I worry for 2 reasons…
1) We’ve left Las Vegas twice and were back within months because there is NO MONEY anywhere else. Sure, I’m working on my first manuscript and I can write from anywhere, but what about in the mean time?
2) Small towns = less doctors & less therapists. How is this going to help our son?
So, we’ve been butting heads a little bit on top of all this stress and I’m about to explode… or run away. Yep.
Breakfast was an over-easy egg cooked in non-stick spray with lean steak and almond milk. Lunch was chicken breast with brown rice. When Zack wakes up from quiet time, we will have some sliced apples covered in Better Than Cream Cheese. Dinner will be some quinoa pasta with Prego and peas for Zack, a salad for me. Dessert will be marshmallows for Zack and when he’s in bed, I’ll grab a couple of my dark chocolate covered cherries. I cannot be TOTALLY GFCF with him because it’s driving me nuts while he seems to be totally fine with it now. I just eat GFCF when he’s around. Does that make me a bad person?